Committed to Research

Nursing and Midwifery research
The Western Sydney Clinical Frailty Registry

Western Sydney Clinical Frailty Registry is a prospective cohort study of patients who are admitted under Rehabilitation and Aged Care Services, Blacktown and Mount Druitt Hospital. This study is co-led by Prof Richard Lindley and Prof Caleb Ferguson and is designed to facilitate a local approach to understanding frailty status and associated conditions and improving outcomes. The Registry has approximately 1000 older adults enrolled and will provide detailed representative data on frailty status and outcomes of patients admitted to Blacktown and Mount Druitt Hospital, as well as capacity building opportunities for the Western Sydney Local Health District. The Western Sydney Frailty Registry is the only frailty registry listed on the Australian Registry of Clinical Registries (Registry ID: ACSQHC-ARCR-095).

 

The INFORM AF Study

INFORM AF is a co-designed digital education program for people living with atrial fibrillation (AF). It consists of 6-8 case scenario-based AF questions delivered through an mHealth application spaced learning platform. INFORM AF was developed in response to the significant gaps in the quality provision of AF education in Western Sydney and nationally as identified in an exploratory qualitative study of patients with AF, clinicians, and expert key stakeholders. In a recent quasi-experimental study, INFORM AF was found to be feasible and acceptable and resulted in significant improvements in AF knowledge and quality of life at 6 weeks, 3, 6 and 12 months. INFORM AF is currently being tested in a prospective, open-label, blinded endpoint, randomised controlled trial to determine its effect on re-hospitalisation, all-cause mortality, cardiovascular-related hospitalisation, medication adherence, AF-related knowledge, and quality of life. The trial is funded by the National Health & Medical Research Council and the Nancy & Vic Allen Stroke Prevention Memorial Grant, provided through the Stroke Foundation (Australia).

 

BANDAID-Explore

BANDAID-Explore aimed to explore the educational and self-management needs for patients living with heart failure. The BANDAID-Explore will study allow for a greater understanding of the patients’ experience of living with heart failure, what information, and education or support they would need to know to improve self-manage of their heart condition. This study applied an exploratory qualitative design to gain insight into key topic areas for heart failure patient education and to greater understand what is most important to patients. This study was conducted at Royal Prince Alfred Hospital and/or The University of Sydney through a series of focus groups with patients, their carers and healthcare professionals. Researchers worked with these groups to establish priority areas for patient education, that will inform an mHealth educational program called eTips for evaluation in a future study called BANDAIDS e-TIPs coordinated by the NHMRC Clinical Trials Centre. This study is funded by the Australian government’s Medical Research Future Fund.

 

ECO-Implementation (De-implementation) Research

Dr John Rihari-Thomas’s research interests lay with implementation science and behaviour change, with a keen interest in implementing research into nursing practice by working pragmatically with clinicians. After 5 years involvement working closely with and supporting clinicians in large, randomised controlled trials, he is currently working on the 'Using Evidence-based constructs to de-implement low value healthcare; A mixed methods pilot study' (ECO). The ECO study is designed to determine the effectiveness & feasibility of a pragmatic organisational ward level intervention to de-implement routine low value care practices and support the introduction of an assessment tool to proactively screen for and determine, only those patients at risk of avoidable harm that require further assessment screening.

 

 

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