Dragonfly artwork by Leanne Tobin

 

Understanding the end of life needs of Aboriginal,
Torres Strait Islander and Arabic, Hindi and
Mandarin speaking communities
who live in Western Sydney

 

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Dragonfly artwork by Leanne Tobin. Leanne's artwork reflects the vibrancy and transitional motions of the dragonflies as they move through their journey of life.

This research seeks to understand, in detail, the diverse end of life and palliative care needs of the Aboriginal community and those from an Arabic, Hindi and Mandarin speaking background, living in Western Sydney.

This information will help health professionals better understand the specific cultural needs of these communities around caring for someone in the last stages of life. Western Sydney Local Health District will use the research findings to recommend more culturally sensitive services for all Western Sydney communities requiring end of life support.

This multi-stage project is due for completion in late 2022. To date, we have conducted a broad knowledge survey about end of life and end of life caring experience and held discussion groups and individual interviews with community members about their cultural needs for support and services. People from Aboriginal, Hindi, Arabic and Mandarin communities who have participated in the individual Photovoice interviews will have their stories and photos published in a community book, which will be presented to the participants and community organisations in 2022. We have also interviewed many community-based cultural advisors and end of life health professionals, which will continue in 2022 with a focus on bereavement needs as part of the spectrum of end of life care.

 

 

Community engagement is a research priority. Toward the end of the project, we will be inviting people who participated in the study, and other interested members of the communities to a forum. At this open forum, we will be sharing the results of the project, and asking for feedback and any further recommendations.

The project is a joint undertaking between The Caring at End of Life research team at Western Sydney University and the Western Sydney Local Health District and is funded by the NSW Ministry of Health. It has received ethics approval from the Western Sydney University and Western Sydney Local Health District Ethics Committees, and the Aboriginal Health & Medical Research Council.

If you would like further information on the project or would like to leave your details to be contacted about developments, then please contact our research coordinator:

Peta Hinton
Caring at End of Life Research Team
Western Sydney University
Email: p.hinton@westernsydney.edu.au
Phone: 02 9852 5036

The project team

From Western Sydney University (School of Social Sciences & the Translational Research Institute):

From Western Sydney Local Health District:

Dragonfly artwork by Leanne Tobin